8-Month-Old Yuvaansh Battles Rare Deadly Disease

Haryana : An emotional and heart-wrenching plea for help has come from a father in Haryana, whose 8-month-old son Yuvaansh is suffering from one of the world’s rarest and deadliest genetic disorders. Diagnosed with Spinal Muscular Atrophy (SMA) Type-1, Yuvaansh’s only chance of survival lies in an injection called Zolgensma, one of the most expensive medicines globally, priced at ₹14.50 crore

Yuvasnh is the son of a police constable posted in Fatehabad, Haryana. His father, who serves in the Haryana Police Department, is desperately seeking financial help to arrange the life-saving dose, which needs to be administered before the child turns two years old. According to doctors, the sooner the injection is given, the higher the chance of saving his life and preventing irreversible damage to his muscles

SMA is a rare neuromuscular disorder that affects the motor nerve cells in the spinal cord, leading to progressive muscle wasting and weakness. In Type-1, which is the most severe form, infants often face difficulty in breathing, swallowing, and even sitting. Without treatment, most children do not survive beyond the age of two

Yuvasnh was diagnosed after his parents noticed he was unable to lift his neck and showed signs of extreme weakness. Upon further medical testing, the heartbreaking diagnosis of SMA was confirmed. The only ray of hope is Zolgensma, a gene therapy that replaces the faulty gene responsible for the condition and is approved for one-time use in infants

The family, which comes from a modest background, cannot afford the astronomical cost of the treatment. They have now turned to the public for support. Social media campaigns are underway, with appeals being shared on platforms like Instagram, Twitter, and Facebook, in hopes that compassionate individuals and organizations will come forward to contribute

Several NGOs and crowdfunding platforms have also started fundraising drives for Yuvaansh. The story of this young boy has touched thousands of hearts, and donations have started pouring in from across the country. Still, a long way remains to reach the required amount

The parents urge people not just to donate but also to spread the message so it can reach potential donors or philanthropic groups. Yuvaansh’s battle is not just for life, but also a reminder of the struggles many families face when lifesaving treatments are priced beyond reach